My name is Sofia Cervantes, and my VM journey began at the age of four when my parents noticed that I was limping as I walked. Concerned, they sought medical opinions both in the U.S. and abroad to diagnose my condition. Initially, I was misdiagnosed, but a few years later, I received the correct diagnosis: Vascular Malformation (VM) in my left leg. Uncertain about the best treatment options, my mother started to research my condition. One day, she discovered a Facebook group where parents and VM patients shared their experiences and insights. Through this community, we connected with a highly recommended doctor, whom I first met when I was ten years old. After our initial appointment, I was scheduled for my first sclerotherapy at the age of eleven. Now, as a junior in high school, I have undergone five sclerotherapies and many years of physical therapy. Throughout this journey, my parents have actively sought resources online, utilizing websites and social media to find support and information.

I’m incredibly grateful for the support that I have received from my family, doctors, and coaches to help me navigate this condition. I was inspired to create this platform to facilitate networking among VM patients and provide more resources to those who faced similar challenges in seeking diagnosis, treatment and managing their condition. By sharing my story and amplifying the voices of others, I hope to help patients learn how to better take care of themselves and feel less alone.